6 THINGS I WISH I KNEW BEFORE OPEN HEART SURGERY

This day three years ago we woke up like any other day at 5am (my kids never did get that memo about 7am wake-up protocol), but this day wasn’t like any other early morning… Three days prior we’d been told that without heart surgery Eden wouldn’t see out the week, her cardiac failure that she’d… Continue reading 6 THINGS I WISH I KNEW BEFORE OPEN HEART SURGERY

Wee, Wee, Wee all the way home!

(Pretty happy girl heading off to daycare in big girl pants). WEEK 1 So turns out my mums crazy… all week she’s been putting these things called undies on me. She must have run out of nappies or something, they don’t seem to hold much. Oh and she’s also making me sit on a “toilet”,… Continue reading Wee, Wee, Wee all the way home!

Eden’s Birth Story

This first part was written a week after Eden was born, excuse the DRAMA So my babies one week old, what a week! Last time I went through this I was amazed they let me out of hospital with a child. I kept telling myself ‘16 year olds can do it Ruth, so can you’.… Continue reading Eden’s Birth Story

I wish

I wish I hadn’t cried so much I wish I hadn’t seen a diagnosis I wish I’d seen how beautiful you were I wish I hadn’t thought you were broken I wish I’d realised I was broken I wish I hadn’t judged you by the shape of your eyes I wish I had known they… Continue reading I wish

Then this happened!

Recently my amazing husband wrote a poem ‘I Don’t Want to Change Her, But…’ it’s pretty awesome. Today we got a bit creative… I DON’T WANT TO CHANGE HER, BUT… This is not the way I’d thought I’d start, To share this message from my heart. A question asked from my little buddy That left… Continue reading Then this happened!

I don’t want to change her, but…

This is not the way I’d thought I’d start To share this message from my heart A question asked from my little buddy That left Dad feeling somewhat cruddy! The little voice asked as we left home “Does anyone wish Eden didn’t have Down syndrome?” Mum jumped straight in, with no way, no how while… Continue reading I don’t want to change her, but…

Five ways to avoid diagnosis faux pas

By Ruth Usher Really this should be called part two, but who’s going to click on something called that (not this little ‘click bait’ junkie). Recently I wrote an article called ‘Whats wrong with her? And 10 other things you should never say to the parent of a child with Down syndrome’, if you haven’t… Continue reading Five ways to avoid diagnosis faux pas