This day three years ago we woke up like any other day at 5am (my kids never did get that memo about 7am wake-up protocol), but this day wasn’t like any other early morning… Three days prior we’d been told that without heart surgery Eden wouldn’t see out the week, her cardiac failure that she’d… Continue reading 6 THINGS I WISH I KNEW BEFORE OPEN HEART SURGERY
This first part was written a week after Eden was born, excuse the DRAMA So my babies one week old, what a week! Last time I went through this I was amazed they let me out of hospital with a child. I kept telling myself ‘16 year olds can do it Ruth, so can you’.… Continue reading Eden’s Birth Story
I’m not sure if I have mentioned any of my fears in our blog before, but one of the biggest ones I have had up until recently, was the possibility, even ever so slight, that Eden would have been non-verbal in her ability to communicate, the thought “what happens if I never get to hear… Continue reading Lessons from Shaun the Sheep?
This is not the way I’d thought I’d start To share this message from my heart A question asked from my little buddy That left Dad feeling somewhat cruddy! The little voice asked as we left home “Does anyone wish Eden didn’t have Down syndrome?” Mum jumped straight in, with no way, no how while… Continue reading I don’t want to change her, but…
by Ruth Usher Didn’t you have the test? Not that it’s any of your business but if you must know, no I didn’t! And my reason for that is because prenatal testing would not show me HOW FREAKIN’ AWESOME she would be, it wouldn’t tell me how smart she would be, how quickly she will… Continue reading What’s wrong with her? And 10 other things you should never say to the parent of a child with Down syndrome.
Written by Ruth Usher Last Spring a friend and I packed the kids up on a Wednesday afternoon and took off to Currumbin Beach to see the Swell Art Sculpture Festival. I had never been before and I truly was blown away by the quality of work before I even found a car park. Some of… Continue reading There’s ONE thing special needs parents all have in common…
LABEL THIS!!! (Feel free to picture me saying this with 1 finger up, your choice which finger) In my life I have had the privilege of rubbing shoulders with world leaders in the areas of Religion, Politics, Business, and Music. I have met some of the best “Motivational” speakers around, whilst they have had some… Continue reading LABEL THIS!!!