This day three years ago we woke up like any other day at 5am (my kids never did get that memo about 7am wake-up protocol), but this day wasn’t like any other early morning… Three days prior we’d been told that without heart surgery Eden wouldn’t see out the week, her cardiac failure that she’d… Continue reading 6 THINGS I WISH I KNEW BEFORE OPEN HEART SURGERY
Just over a week ago we rushed our little girl to hospital with a confirmed case of pneumonia. Over the course of the next 36 hrs she reached the extent of care in a local hospital and we were then airlifted to our states largest paediatric hospital. Over the space of the next 48 hrs,… Continue reading Scattered brain of a PICU mum
This first part was written a week after Eden was born, excuse the DRAMA So my babies one week old, what a week! Last time I went through this I was amazed they let me out of hospital with a child. I kept telling myself ‘16 year olds can do it Ruth, so can you’.… Continue reading Eden’s Birth Story
I wish I hadn’t cried so much I wish I hadn’t seen a diagnosis I wish I’d seen how beautiful you were I wish I hadn’t thought you were broken I wish I’d realised I was broken I wish I hadn’t judged you by the shape of your eyes I wish I had known they… Continue reading I wish
I’m not sure if I have mentioned any of my fears in our blog before, but one of the biggest ones I have had up until recently, was the possibility, even ever so slight, that Eden would have been non-verbal in her ability to communicate, the thought “what happens if I never get to hear… Continue reading Lessons from Shaun the Sheep?
Recently my amazing husband wrote a poem ‘I Don’t Want to Change Her, But…’ it’s pretty awesome. Today we got a bit creative… I DON’T WANT TO CHANGE HER, BUT… This is not the way I’d thought I’d start, To share this message from my heart. A question asked from my little buddy That left… Continue reading Then this happened!
This is not the way I’d thought I’d start To share this message from my heart A question asked from my little buddy That left Dad feeling somewhat cruddy! The little voice asked as we left home “Does anyone wish Eden didn’t have Down syndrome?” Mum jumped straight in, with no way, no how while… Continue reading I don’t want to change her, but…