I wish

I wish I hadn’t cried so much I wish I hadn’t seen a diagnosis I wish I’d seen how beautiful you were I wish I hadn’t thought you were broken I wish I’d realised I was broken I wish I hadn’t judged you by the shape of your eyes I wish I had known they… Continue reading I wish

Lessons from Shaun the Sheep?

I’m not sure if I have mentioned any of my fears in our blog before, but one of the biggest ones I have had up until recently, was the possibility, even ever so slight, that Eden would have been non-verbal in her ability to communicate, the thought  “what happens if I never get to hear… Continue reading Lessons from Shaun the Sheep?

Then this happened!

Recently my amazing husband wrote a poem ‘I Don’t Want to Change Her, But…’ it’s pretty awesome. Today we got a bit creative… I DON’T WANT TO CHANGE HER, BUT… This is not the way I’d thought I’d start, To share this message from my heart. A question asked from my little buddy That left… Continue reading Then this happened!

I don’t want to change her, but…

This is not the way I’d thought I’d start To share this message from my heart A question asked from my little buddy That left Dad feeling somewhat cruddy! The little voice asked as we left home “Does anyone wish Eden didn’t have Down syndrome?” Mum jumped straight in, with no way, no how while… Continue reading I don’t want to change her, but…

Five ways to avoid diagnosis faux pas

By Ruth Usher Really this should be called part two, but who’s going to click on something called that (not this little ‘click bait’ junkie). Recently I wrote an article called ‘Whats wrong with her? And 10 other things you should never say to the parent of a child with Down syndrome’, if you haven’t… Continue reading Five ways to avoid diagnosis faux pas

What’s wrong with her? And 10 other things you should never say to the parent of a child with Down syndrome.

by Ruth Usher Didn’t you have the test? Not that it’s any of your business but if you must know, no I didn’t! And my reason for that is because prenatal testing would not show me HOW FREAKIN’ AWESOME she would be, it wouldn’t tell me how smart she would be, how quickly she will… Continue reading What’s wrong with her? And 10 other things you should never say to the parent of a child with Down syndrome.

There’s ONE thing special needs parents all have in common…

Written by Ruth Usher Last Spring a friend and I packed the kids up on a Wednesday afternoon and took off to Currumbin Beach to see the Swell Art Sculpture Festival. I had never been before and I truly was blown away by the quality of work before I even found a car park. Some of… Continue reading There’s ONE thing special needs parents all have in common…