Then this happened!

Recently my amazing husband wrote a poem ‘I Don’t Want to Change Her, But…’ it’s pretty awesome. Today we got a bit creative…


This is not the way I’d thought I’d start,
To share this message from my heart.
A question asked from my little buddy
That left Dad feeling somewhat cruddy!

The little voice asked as we left home,
“Does anyone wish Eden didn’t have Down syndrome?”
Mum jumped straight in, with ‘No way, no how!’
While my heart dropped low, and my head took a bow.

Now before you say, “Well, that’s just not right!”
And before you try to pick a fight,
I love Eden Rose more than anyone.
And I hope you understand this when I’m done.

My little girl had all of my heart,
From the get go, right from the start.
She had me wrapped ’round her little finger
That’s why the pain of this question, will linger.

There is nothing to change, not one little thing.
She’s my angel, my dream, she makes my heart sing.
She’s funny, loving, determined and sneaky.
She’s strong, fierce and a whole heap of cheeky!

Her love is bold, pure and true.
Accepting of others, yes even you!
This world unfortunately won’t always see this
She’ll bear the brunt of those who “take the piss”

The thought of this cuts deep for me.
The Father’s heart wants to protect, you see.
I would give all I have and then some,
To save her from other peoples dumb.

Saving from all that hurts or scars,
And to set her high among the stars
A love so deep, it wants to shield her pain
To keep her away from others’ stain.

I don’t feel this way from a diagnosis;
It’s this broken world that brings my prognosis.
The fear of ‘different’ that eats away,
It stops us from just saying G’day.

There is nothing here that you can catch.
But a beautiful relationship just might hatch!
If you stop for a moment and truly see,
It’s not the “dis” but the ability.

My angel was sent to me from above,
To show us what it means to love.
So after all this, it’s not her, it’s us
WE need to change our prejudice.

-Colin Usher.



7 thoughts on “Then this happened!

  1. Hello Colin and Ruth You love your little offspring just like any other couple who live each other do. You are blessing and encouraging others with an attitude if gratitude. On another note, it is lovely to have your parents staying here while your beautiful mum is in hospital. When they first left for E I used to weep as I miss her. However it is right for this time of their lives. Love Bonita and Peter

    Sent from my iPhone



  2. Colin, what a beautiful poem – so true!! I can relate totally. You guys are doing so amazingly as parents of both your beautiful children. So much love, Cheryl xx


  3. This is probably the most beautiful poem I have ever heard. Have you guys considered putting it up on Youtube? People need to hear this message!


  4. Such an important message Im glad I had the pleasure of listening to your poem. Congrats on your beautiful little family! Amazing parents and what a gorgeous girl you have. Even grey days will be filled with sunshine when she is around x


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