I don’t want to change her, but…


This is not the way I’d thought I’d start
To share this message from my heart
A question asked from my little buddy
That left Dad feeling somewhat cruddy!

The little voice asked as we left home
“Does anyone wish Eden didn’t have Down syndrome?”
Mum jumped straight in, with no way, no how
while my heart dropped low and my head took a bow

Now before you go “well that’s just not right!”
And before you try to pick a fight
I love Eden Rose more than anyone
And I hope you understand this when I’m done

My little girl had all of my heart
From the get go, right from the start
She had me wrapped ’round her little finger
That’s why the pain of this question will linger

There is nothing to change, not one little thing
She’s my angel, my dream, she makes my heart sing
She’s funny, loving, determined and sneaky
She’s strong, fierce and a whole heap of cheeky

Her love is bold, pure and true
Accepting of others, yes even you!
This world unfortunately won’t always see this
And she’ll bare the brunt of those who “take the piss”

The thought of this cuts deep for me
The Fathers heart wants to protect you see
I would give all I have and then some
To save her from other peoples dumb

Saving from all that hurts or scars
And to set her high among the stars
A love so deep, it wants to shield her pain
To keep her away from others stain

I don’t feel this way from a diagnosis
It’s this broken world that brings my prognosis
The fear of ‘different’ that eats away
It stops us from just saying G’day

There is nothing here that you can catch
But a beautiful relationship just might hatch
If you stop for a moment and truly see,
It’s not the “dis” but the ability

My angel was sent to me from above,
To show us what it means to love
So after all this, it’s not her, it’s us
WE need to change our prejudice.


5 thoughts on “I don’t want to change her, but…

  1. I just want to say, I recently had a baby and he was diagnosed with T21 when he was two hours old. These feelings you talk about are real in Me as well and I read your post with tears streaming down my face. Thank you.


  2. That was beautiful and sums up my feelings perfectly for our little boy who was born eight months ago with Down Syndrome. That wholehearted love for a wee darling but tinged with a tiny bit of sadness and ‘what if…’ I feel so privileged to have Michael teach me about love and life and how to break down my misconceptions, but sad that it may have a cost involved for him – in some health issues and the way others perceive him. I guess the challenge for us as parents too, is not to let them see that sadness.


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